DE VRIES, JANTINA: search on Z-Library

The world's largest scientific articles store. 70,000,000+ articles for free.

Don't use scam websites

1

Ethical issues in human genomics research in developing countries

Jantina de Vries, Susan J Bull, Ogobara Doumbo, Muntaser Ibrahim, Odile Mercereau-Puijalon, Dominic Kwiatkowski, Michael Parker

Journal:

BMC Medical Ethics

Year:

2011

Language:

english

File:

PDF, 246 KB

english, 2011

2

Ethical considerations in forensic genetics research on tissue samples collected post-mortem in Cape Town, South Africa

Heathfield, Laura J., Maistry, Sairita, Martin, Lorna J., Ramesar, Raj, de Vries, Jantina

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 380 KB

english, 2017

3

Stigma in African genomics research: Gendered blame, polygamy, ancestry and disease causal beliefs impact on the risk of harm

de Vries, Jantina, LandourÃ©, Guida, Wonkam, Ambroise

Journal:

Social Science & Medicine

Year:

2020

File:

PDF, 486 KB

2020

4

Exploring how a genetic attribution to disease relates to stigma experiences of Xhosa patients with schizophrenia in South Africa

Matshabane, Olivia P., Campbell, Megan M., Faure, Marlyn C., Marshall, Patricia A., Mayosi, Bongani M., Stein, Dan J., Appelbaum, Paul S., de Vries, Jantina

Journal:

Social Psychiatry and Psychiatric Epidemiology

Year:

2020

File:

PDF, 458 KB

2020

5

The NeuroDev Study: Phenotypic and Genetic Characterization of Neurodevelopmental Disorders in Kenya and South Africa

de Menil, Victoria, Hoogenhout, Michelle, Kipkemoi, Patricia, Kamuya, Dorcas, Eastman, Emma, Galvin, Alice, Mwangasha, Katini, de Vries, Jantina, Kariuki, Symon M., Murugasen, Serini, Mwangi, Paul, Si

Journal:

Year:

2019

Language:

english

File:

PDF, 385 KB

english, 2019

6

Global Mental Health and Neuroethics || The ethics of neurogenetics research in Africa: Considerations and guidelines

de Vries, Jantina

Year:

2020

File:

PDF, 108 KB

2020

7

Ethical implications of the use of whole genome methods in medical research

Kaye, Jane, Boddington, Paula, de Vries, Jantina, Hawkins, Naomi, Melham, Karen

Journal:

European Journal of Human Genetics

Year:

2009

Language:

english

File:

PDF, 278 KB

english, 2009

8

Lived Experiences of Fragile X Syndrome Caregivers: A Scoping Review of Qualitative Studies

Kamga, Karen Kengne, De Vries, Jantina, Nguefack, Seraphin, Munung, Syntia Nchangwi, Wonkam, Ambroise

Journal:

Frontiers in Neurology

Year:

2020

Language:

english

File:

PDF, 1.14 MB

english, 2020

9

Psychiatric Genomics: Ethical Implications for Public Health in Lower- and Middle-Income Countries

de Vries, Jantina, Stein, Dan J., Kamuya, Dorcas, Singh, Ilina

Journal:

American Journal of Bioethics

Year:

2017

Language:

english

File:

PDF, 344 KB

english, 2017

10

T42EXPLORING WHETHER A GENETIC ATTRIBUTION TO DISEASE RELATES TO INTERNALISED STIGMA EXPERIENCES OF XHOSA PATIENTS WITH SCHIZOPHRENIA IN SOUTH AFRICA

Matshabane, Olivia, Campbell, Megan, Faure, Marlyn, Marshall, Patricia, Mayosi, Bongani, Stein, Dan, Appelbaum, Paul, de Vries, Jantina

Journal:

European Neuropsychopharmacology

Year:

2019

Language:

english

File:

PDF, 72 KB

english, 2019

11

Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committees

Michèle Ramsay,Jantina de Vries,Himla Soodyall,Shane A Norris…

Journal:

Year:

2014

Language:

english

File:

PDF, 150 KB

english, 2014

12

Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and Protection

Church, George, Heeney, Catherine, Hawkins, Naomi, de Vries, Jantina, Boddington, Paula, Kaye, Jane, Bobrow, Martin, Weir, Bruce, Gibson, Greg

Journal:

Year:

2009

Language:

english

File:

PDF, 93 KB

english, 2009

13

Community engagement in global health research that advances health equity

Pratt, Bridget, de Vries, Jantina

Journal:

Year:

2018

Language:

english

File:

PDF, 796 KB

english, 2018

14

Data sharing in genomics — re-shaping scientific practice

Kaye, Jane, Heeney, Catherine, Hawkins, Naomi, de Vries, Jantina, Boddington, Paula

Journal:

Nature Reviews Genetics

Year:

2009

Language:

english

File:

PDF, 222 KB

english, 2009

15

Purity determinations in the bulk drug of the novel indoloquinone antitumor agent EO9

Jantine D. Jonkman-de Vries, J. Jantina Kettenes-van den Bosch, Roland E. C. Henrar, Auke Bult, Jos H. Beijnen

Journal:

Investigational New Drugs

Year:

1996

Language:

english

File:

PDF, 746 KB

english, 1996

16

A perpetual source of DNA or something really different: ethical issues in the creation of cell lines for African genomics research

Jantina de Vries,Akin Abayomi,James Brandful,Katherine Littler…

Journal:

BMC Medical Ethics

Year:

2014

Language:

english

File:

PDF, 263 KB

english, 2014

17

ASSAf consensus study on the ethical, legal and social implications of genetics and genomics in South Africa

Pepper, Michael S., Dandara, Collet, de Vries, Jantina, Dhai, Amaboo, Labuschaigne, Melodie, Mnyongani, Freddy, Moodley, Keymanthri, Olckers, Antonel, Pope, Anne, Ramesar, Raj, Ramsay, Michele, Soodya

Journal:

South African Journal of Science

Year:

2018

File:

PDF, 96 KB

2018

18

Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model

Tindana, Paulina, Yakubu, Aminu, Staunton, Ciara, Matimba, Alice, Littler, Katherine, Madden, Ebony, Munung, Nchangwi Syntia, de Vries, Jantina

Journal:

BMC Medical Ethics

Year:

2019

File:

PDF, 607 KB

2019

19

Knowing who to trust: exploring the role of ‘ethical metadata’ in mediating risk of harm in collaborative genomics research in Africa

Jantina de Vries,Thomas N Williams,Kalifa Bojang…

Journal:

BMC Medical Ethics

Year:

2014

Language:

english

File:

PDF, 307 KB

english, 2014

20

Model framework for governance of genomic research and biobanking in Africa – a content description

Yakubu, Aminu, Tindana, Paulina, Matimba, Alice, Littler, Katherine, Munung, Nchangwi Syntia, Madden, Ebony, Staunton, Ciara, De Vries, Jantina

Journal:

AAS Open Research

Year:

2018

Language:

english

File:

PDF, 301 KB

english, 2018

21

Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model

Tindana, Paulina, Yakubu, Aminu, Staunton, Ciara, Matimba, Alice, Littler, Katherine, Madden, Ebony, Munung, Nchangwi Syntia, de Vries, Jantina

Journal:

BMC Medical Ethics

Year:

2019

Language:

english

File:

PDF, 607 KB

english, 2019

22

Accessing Biospecimens from the H3Africa Consortium

Beiswanger, Christine M., Abimiku, Alash'le, Carstens, Nadia, Christoffels, Alan, de Vries, Jantina, Duncanson, Audrey, du Plessis, Morne, Giovanni, Maria, Littler, Katherine, Mulder, Nicola, Troyer,

Journal:

Biopreservation and Biobanking

Year:

2017

Language:

english

File:

PDF, 247 KB

english, 2017

23

Deliberation to Promote Shared Sovereignty in Health Research: Four Questions to Clarify Goals, Methods, and Scope

de Vries, Jantina, Munung, Syntia Nchangwi, Tindana, Paulina

Journal:

American Journal of Bioethics

Year:

2016

Language:

english

File:

PDF, 301 KB

english, 2016

24

Returning incidental findings in African genomics research

Wonkam, Ambroise, de Vries, Jantina

Journal:

Nature Genetics

Year:

2019

File:

PDF, 717 KB

2019

25

Investigating the potential for ethnic group harm in collaborative genomics research in Africa: Is ethnic stigmatisation likely?

Jantina de Vries, Muminatou Jallow, Thomas N. Williams, Dominic Kwiatkowski, Michael Parker, Raymond Fitzpatrick

Journal:

Social Science & Medicine

Year:

2012

Language:

english

File:

PDF, 175 KB

english, 2012

26

The governance of genomic biobank research in Africa: reframing the regulatory tilt

Staunton, Ciara, de Vries, Jantina

Journal:

Journal of Law and the Biosciences

Year:

2020

File:

PDF, 350 KB

2020

27

H3Africa: current perspectives

Mulder, Nicola, Abimiku, Alash'le, Adebamowo, Sally N, de Vries, Jantina, Matimba, Alice, Olowoyo, Paul, Ramsay, Michele, Skelton, Michelle, Stein, Dan J

Journal:

Pharmacogenomics and Personalized Medicine

Year:

2018

Language:

english

File:

PDF, 148 KB

english, 2018

28

Exploring researchers’ experiences of working with a researcher-driven, population-specific community advisory board in a South African schizophrenia genomics study

Campbell, Megan M., Susser, Ezra, de Vries, Jantina, Baldinger, Adam, Sibeko, Goodman, Mndini, Michael M., Mqulwana, Sibonile G., Ntola, Odwa A., Ramesar, Raj S., Stein, Dan J.

Journal:

BMC Medical Ethics

Year:

2015

Language:

english

File:

PDF, 411 KB

english, 2015

29

Planning for translational research in genomics

Naomi Hawkins, Jantina de Vries, Paula Boddington, Jane Kaye…

Journal:

Genome Medicine

Year:

2009

Language:

english

File:

PDF, 104 KB

english, 2009

30

Community engagement strategies for genomic studies in Africa: a review of the literature

Tindana, Paulina, de Vries, Jantina, Campbell, Megan, Littler, Katherine, Seeley, Janet, Marshall, Patricia, Troyer, Jennifer, Ogundipe, Morisola, Alibu, Vincent Pius, Yakubu, Aminu, Parker, Michael

Journal:

BMC Medical Ethics

Year:

2015

Language:

english

File:

PDF, 536 KB

english, 2015

31

Relative solidarity: Conceptualising communal participation in genomic research among potential research participants in a developing Sub-Saharan African setting

Ogunrin, Olubunmi, Woolfall, Kerry, Gabbay, Mark, Frith, Lucy, de Vries, Jantina

Journal:

Year:

2018

Language:

english

File:

PDF, 1.17 MB

english, 2018

32

Ethical Data Release in Genome-Wide Association Studies in Developing Countries

Parker, Michael, Bull, Susan J., de Vries, Jantina, Agbenyega, Tsiri, Doumbo, Ogobara K., Kwiatkowski, Dominic P.

Journal:

Year:

2009

Language:

english

File:

PDF, 221 KB

english, 2009

33

Predictors of consent to cell line creation and immortalisation in a South African schizophrenia genomics study

Campbell, Megan M., de Vries, Jantina, Mqulwana, Sibonile G., Mndini, Michael M., Ntola, Odwa A., Jonker, Deborah, Malan, Megan, Pretorius, Adele, Zingela, Zukiswa, Van Wyk, Stephanus, Stein, Dan J.,

Journal:

BMC Medical Ethics

Year:

2018

Language:

english

File:

PDF, 585 KB

english, 2018

34

Implications of direct-to-consumer whole-exome sequencing in South Africa

Lombard, Zané, Baine, Fiona, Krause, Amanda, Lochan, Anneline, Macualay, Shelley, Spencer, Careni, Aldous, Colleen, De Vries, Jantina, Fieggen, Karen, Henderson, Bertram, Hoal, Eileen, Kinnear, Craig,

Journal:

South African Medical Journal

Year:

2016

Language:

english

File:

PDF, 72 KB

english, 2016

35

An optimistic vision for biosciences in South Africa: Reply to Thaldar et al. (2019)

Michael S. Pepper, Michael S., Dandara, Collet, de Vries, Jantina, Dhai, Amaboo, Labuschaigne, Melodie, Mnyongani, Freddy, Moodley, Keymanthri, Olckers, Antonel, Pope, Anne, Ramesar, Raj, Ramsay, Mich

Journal:

South African Journal of Science

Year:

2019

File:

PDF, 341 KB

2019

36

Stakeholder Perspectives on Public Health Genomics Applications for Sickle Cell Disease: A Methodology for a Human Heredity and Health in Africa (H3Africa) Qualitative Research Study

Treadwell, Marsha J., Makani, Julie, Ohene-Frempong, Kwaku, Ofori-Acquah, Solomon, McCurdy, Sheryl, de Vries, Jantina, Bukini, Daima, Dennis-Antwi, Jemima, Kamga, Karen Kengne, Mbekenga, Columba, Wonk

Journal:

Omics A Journal of Integrative Biology

Year:

2017

Language:

english

File:

PDF, 349 KB

english, 2017

37

What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda

Rutakumwa, Rwamahe, de Vries, Jantina, Parker, Michael, Tindana, Paulina, Mweemba, Oliver, Seeley, Janet

Journal:

Global Bioethics

Year:

2019

Language:

english

File:

PDF, 1.45 MB

english, 2019

38

Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations

Munung, Nchangwi Syntia, Nembaware, Victoria, de Vries, Jantina, Bukini, Daima, Tluway, Furahini, Treadwell, Marsha, Sangeda, Raphael Zozimus, Mazandu, Gaston, Jonas, Mario, Paintsil, Vivian, Nnodu, O

Journal:

Frontiers in Genetics

Year:

2019

Language:

english

File:

PDF, 785 KB

english, 2019

39

Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia

Mweemba, Oliver, Musuku, John, Mayosi, Bongani M., Parker, Michael, Rutakumwa, Rwamahe, Seeley, Janet, Tindana, Paulina, De Vries, Jantina

Journal:

Global Bioethics

Year:

2019

Language:

english

File:

PDF, 1.59 MB

english, 2019

40

Do solidarity and reciprocity obligations compel African researchers to feedback individual genetic results in genomics research?

Ralefala, Dimpho, Kasule, Mary, Wonkam, Ambroise, Matshaba, Mogomotsi, de Vries, Jantina

Journal:

BMC Medical Ethics

Year:

2020

File:

PDF, 956 KB

2020

41

OC 8360âGLOBAL HEALTH RESEARCH AND ITS ROLE IN IMPROVING HEALTH AND HEALTH EQUITY IN AFRICA

Munung, Nchangwi Syntia, Vries, Jantina De, Pratt, Bridget F

Journal:

BMJ Global Health

Year:

2019

File:

PDF, 70 KB

2019

42

The obesity epidemic: medical and ethical considerations

Jantina de Vries

Journal:

Science and Engineering Ethics

Year:

2007

Language:

english

File:

PDF, 153 KB

english, 2007

43

Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience

Tindana, Paulina, Bull, Susan, Amenga-Etego, Lucas, de Vries, Jantina, Aborigo, Raymond, Koram, Kwadwo, Kwiatkowski, Dominic, Parker, Michael

Journal:

BMC Medical Ethics

Year:

2012

Language:

english

File:

PDF, 239 KB

english, 2012

44

Dissecting in silico Mutation Prediction of Variants in African Genomes: Challenges and Perspectives

Bope, Christian Domilongo, Chimusa, Emile R., Nembaware, Victoria, Mazandu, Gaston K., de Vries, Jantina, Wonkam, Ambroise

Journal:

Frontiers in Genetics

Year:

2019

Language:

english

File:

PDF, 286 KB

english, 2019

45

Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents

Munung, Nchangwi Syntia, Marshall, Patricia, Campbell, Megan, Littler, Katherine, Masiye, Francis, Ouwe-Missi-Oukem-Boyer, Odile, Seeley, Janet, Stein, D J, Tindana, Paulina, de Vries, Jantina

Journal:

Journal of Medical Ethics

Year:

2016

Language:

english

File:

PDF, 344 KB

english, 2016

46

Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations

Munung, Nchangwi Syntia, Nembaware, Victoria, de Vries, Jantina, Bukini, Daima, Tluway, Furahini, Treadwell, Marsha, Sangeda, Raphael Zozimus, Mazandu, Gaston, Jonas, Mario, Paintsil, Vivian, Nnodu, O

Journal:

Frontiers in Genetics

Year:

2019

File:

PDF, 785 KB

2019

47

Informed consent in genomic research and biobanking: taking feedback of findings seriously

Tindana, Paulina, Depuur, Cornelius, de Vries, Jantina, Seeley, Janet, Parker, Michael

Journal:

Global Bioethics

Year:

2020

File:

PDF, 1.66 MB

2020

48

Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries

de Vries, Jantina, Munung, Syntia Nchangwi, Matimba, Alice, McCurdy, Sheryl, Ouwe Missi Oukem-Boyer, Odile, Staunton, Ciara, Yakubu, Aminu, Tindana, Paulina

Journal:

BMC Medical Ethics

Year:

2017

Language:

english

File:

PDF, 422 KB

english, 2017

49

Ethical Challenges in Contemporary FASD Research and Practice

DI PIETRO, NINA, DE VRIES, JANTINA, PAOLOZZA, ANGELINA, REID, DOROTHY, REYNOLDS, JAMES N., SALMON, AMY, WILSON, MARSHA, STEIN, DAN J., ILLES, JUDY

Journal:

Cambridge Quarterly of Healthcare Ethics

Year:

2016

Language:

english

File:

PDF, 79 KB

english, 2016

50

Addressing ethical issues in H3Africa research – the views of research ethics committee members

de Vries, Jantina, Abayomi, Akin, Littler, Katherine, Madden, Ebony, McCurdy, Sheryl, Ouwe Missi Oukem-Boyer, Odile, Seeley, Janet, Staunton, Ciara, Tangwa, Godfrey, Tindana, Paulina, Troyer, Jennifer

Journal:

The HUGO Journal

Year:

2015

Language:

english

File:

PDF, 311 KB

english, 2015

To build up a library is to create a life. It’s never just a random collection of books.

— Carlos María Domínguez

Official channel

Z-Library Desktop Launcher

Z-Library Since 2009 support@z-lib.do

EnglishРусскийEspañolItalianoελληνικάاللغة العربيةBahasa IndonesiaBahasa Malaysiaहिन्दीDeutschFrançaisPortuguêsУкраїнськаPolski中文繁體中文日本語Tiếng ViệtAzərbaycan DiliՀայոց լեզուภาษาไทยTürk Diliქართველიবাংলাپښتوతెలుగుاردو한국어SrpskiБългарски